The primary goal of the i-HOPE Project was to engage patients, families and other stakeholders to generate a priority list of general research topics and unanswered questions important to the care of the hospitalized patients. These topics and questions should be used by patients, stakeholders, advocacy groups and researches to advance the care of hospitalized patients in the United States and beyond.
The project had seven phases:
1) Identification and invitation of potential partners
2) Initial stakeholder engagement
3) Identifying topics or unanswered questions related to the care of hospitalized patients
4) Refining questions and uncertainties
7) In-person meeting for final question prioritization and refinement
i-HOPE Study Activities
Phase 1: Steering Committee Formation: Nine researchers, eight patients, and two administrators from eight academic medical centers formed a Steering Committee to manage this project. The i-HOPE Steering Committee partnered with SHM our supporting and dissemination partner.
Phase 2: Stakeholder Identification: Stakeholder organizations (patient advocacy groups, providers, researchers, payors, policy makers and funding agencies) were identified and invited to participate in the i-HOPE study.
Phase 3: Stakeholder Engagement and Awareness Training: Representatives from stakeholder organizations who agreed to participate in the study were then further orientated to the study rationale and methods via a series on online interactive webinars.
Phase 4: Documenting Gaps in Care and Questions: We used an online platform to develop and administer a survey to stakeholders, patients and families. The survey asked respondents to identify up to three important topics or questions related to the care of hospitalized patients. Stakeholder organizations were encouraged to send the survey to their entire membership or key leaders of their organization.
Phase 5: Initial question categorization and identification: We used qualitative thematic analysis to categorize all submitted topics and questions.
Phase 6: Interim Priority Setting: We then sent the list of most frequently submitted unique, unformatted, questions to stakeholder organizations and patient partner networks. Each organization was asked to rank the questions that they felt were most important. Each group was allowed flexibility to determine how they arrived at their rank order determination, however they were encouraged to engage with their members or leadership team.
Phase 7: In-person meeting for final question prioritization and refinement: Representatives from stakeholder organizations and all Steering Committee members then participated in a two-day in-person meeting. During this meeting there were a number of small and large group discussions to create a final list of prioritized questions in rank order of importance. Questions were also were edited and refined and reformatted (if necessary) into a research questions during group discussions.
i-Hope Stakeholder Committee study stages: